this is an old post from Medium circa 2017, I’m trying to consolidate posts of mine from around the web into one place.
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Ive wrestled with being comfortable enough to share this story and it really isn’t something I do lightly. It IS something i’ve grown exhausted having to recount to each person I might be interested in… in whatever way… only to have them disappear after hearing the tale.
in September of 2017, I was running a high fever and had a literal pain on my ass, as, what I thought was, a pimple that wouldn’t go away. I thought I was just coming down with the flu. I went to an urgent care facility to get treated for my flu and while I was there I collapsed as my blood pressure dropped. the nurses got me on a table and a doctor asked me what my symptoms were. “I think its just the flu….. and I have this weird pimple on my butt that wont go away.” He pulled down my pants to discover the “pimple” had suddenly begun to grow and quickly. He called an ambulance and I was rushed to a hospital nearby where the doctor there diagnosed me with a flesh eating bacterial infection. He later modified the diagnosis to whats called “Fournier’s Gangrene”
The infection was spreading quickly and my Mother and my (then) partner were there to say their goodbyes. The doctor was brutally honest that a significant number of people do not make it out of surgery with this type of infection. I was brought into surgery and the last thing I remember is thinking how futuristic the surgical lights looked and then I thought I was on a spaceship and then… out.
Over the next two weeks there are some flashes of memory. I remember some of my friends coming to visit. I remember telling my sister about the new Star Wars movie. My first real memory comes from two weeks after that day. I woke to find that the infection had spread and consumed my scrotum. My testicles had been implanted into my thighs and several skin grafts had been done to help me begin to heal. I had been fitted with a colostomy as the entire area from below my anus to around my genitals had to be removed. Luckily, my penis was saved.
I spent the next few week learning how to walk again, how to dress myself and how to bandage and dress my wounds.
After a few months the colostomy was reversed but a scar still remains. There are still so many scars that remain
I’m still dealing with the ramifications of such a major change to my body. I scroll through twitter and see people being proud of their bodies and I’m so happy for them, but I can’t help but think I have this horrible secret, a deformity that I am ashamed of. I survived the surgery, the hospital stay, and the pain that comes still when I bend a way I used to.
There have been the inevitable gender questions, the ideas that without a part of my genitals, am I a “real man”? I can’t help but feel like something deformed and ugly when I see my scars.
I’m not writing this to garner sympathy or pity. I’m writing this so I’ll have your understanding. So you’ll understand why I don’t have a lot of nudes or why I’m anxious about letting another person see my naked body. Because it looks different now. I’m different now.
I am writing this because I want people who suffer from this kind of body dysmorphia to know that you’re not alone. I’m writing this because I need to start the work of being ok with my body and not feeling like a freak. I don’t have any of the answers, but I hope you’ll come a long on this journey with me.